WORLD JOURNAL OF ADVANCE
HEALTHCARE RESEARCH

Aalaa Abed Salim*, Rana Samier Dawood and Mohammed Asaad Ghani Al-Banna

ABSTRACT

Background: hemophilia is one of the most common inherited bleeding disorders. The chronic nature of the disease greatly affects the patients and their families and imposes a great burden upon their lives. And also, it exerts a psychological effect on the patients. And the expensive drugs of the disease make a burden on the healthcare system. Objectives: to assess the quality of life of patients with both hemophilia A and B, and to demonstrate the effect of some sociodemographic factors on the quality of life of these patients. Methods: this is a descriptive cross-sectional study with some analytical elements. It has done in children welfare hospital at Baghdad medical city, and data was collected using self-administered questionnaire, consisting of two parts, the first part demonstrates the sociodemographic and clinical characteristics of the patients, the second part was adapted from the world health organization WHOQOL-bref questionnaire. It included 320 participants. Results: the study showed that the mean age of the patients was 27.5 years and the most frequent age group was between 20- 29 years. 74% of the patients have fair to good socioeconomic status. 228 patients with hemophilia A and 92 with hemophilia B. 20 patients have recorded presence of inhibitors. 188 patients have severe disease. The lowest score was for the physical health domain (mean= 40.31, P value= 0.001) and the highest score was for the environmental health domain (mean= 52.60, P value= 0.001). Conclusion: the study concluded that the overall QOL was poor. There was a significant association between general QOL and age of diagnoses, marital status, number of children, the number of affected children, the presence of family history of hemophilia and the socio-economic status.